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Notice of 12th AGM - 7 December 2023

cilia, ciliopathies, patient, rare disease, agm, BBS, Alstrom, pkd, usher, jeune, joubert, RP

Our Annual General Meeting will be held online on Thursday, 7th December 2023 from 11.30 a.m. to 12.30 p.m.

Agenda:-

  1. Apologies for absence.
  2. To approve the minutes of the 11th Annual General Meeting held on 1 December 2022.
  3. To receive the Board’s Accounts for the period 1 April 2022 to 31 March 2023.
  4. Chair’s Annual Report.
  5. Approve the appointment of Mrs. Kerry Leeson-Beevers as a member of the Board for a term of 3 years.
  6. Approve the reappointment of Dr. Elizabeth Forsythe as a member of the Board for a 2nd term of 3 years.
  7. Approve the membership applications of Beth Cutting, Marina Arbi, Stephen White (CureUsher), Chloe Joyner (Usher Kids UK) and Faryal Ijaz.

An opportunity to ask any questions will be available at the end of the meeting.

Members are able to vote on proceedings.  Non-members also welcome.

If you would like to join us then please contact us.