Networks/Projects
Cilia Network |
|
TheRACil | Advancing therapies for Paediatric Renal Ciliopathies |
BeatPCD | Network to improve diagnosis and clinical care, expand research for PCD patients |
PREDICT |
Towards a PREcise DIagnosis in Ciliopathies |
Cilia Papers | X feed on cilia and the related ciliopathies papers |
CiliaREN |
Improving identification, diagnosis and management of renal ciliopathies |
ERKNet - Rare Kidney Diseases |
European Reference Network for Rare Kidney Disease |
Genetic Alliance UK |
Providing information, support and influence services for patients with Rare Disease, |
Adding the patient voice for genetic conditions to reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education. | |
Eurodis |
Empowering, partnering and advocating for people living with a rare disease in Europe |