Research

Networks/Projects

Cilia Network	Network of researchers and clinicians working on structure and function of motile and primary cilia and centrosomes
TheRACil	Advancing therapies for Paediatric Renal Ciliopathies
BeatPCD	Network to improve diagnosis and clinical care, expand research for PCD patients
PREDICT	Towards a PREcise DIagnosis in Ciliopathies
Cilia Papers	X feed on cilia and the related ciliopathies papers
CiliaREN	Improving identification, diagnosis and management of renal ciliopathies
ERKNet - Rare Kidney Diseases	European Reference Network for Rare Kidney Disease
Genetic Alliance UK	Providing information, support and influence services for patients with Rare Disease,
Rare Disease UK	Adding the patient voice for genetic conditions to reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.
Eurodis	Empowering, partnering and advocating for people living with a rare disease in Europe

Research Labs

May-Simera Germany

Scientific Advisory Board

The Ciliopathy Alliance Scientific Advisory Board is composed of researchers and doctors involved or interested in ciliopathy research and treatment of patients with ciliopathies.

cilia, ciliopathies, research

PubMed Latest

This section contains a feed from PubMed with recent papers on 'ciliopathy', with hyperlinked titles.

When you are on the PubMed site, you can search using any cilia and ciliopathy-related keywords or terms.

Some of the papers are free to read; others require subscriptions.