We want you to enjoy your visit to the Ciliopathy Alliance ("CA") website and we try to ensure that information on our site is accurate, complete and up-to-date.
All information contained on this site is intended for general educational, informational and helpful purposes only. It is not a substitute for professional medical advice or a medical examination. We do not promote or recommend any treatment.
We do not knowingly reproduce inaccurate or libellous material. Individuals and organisations referred to by us do not necessarily endorse this reference. Always seek the advice of your consultant, GP, or other qualified health professional before starting any new treatment. Medical information changes rapidly. We make efforts to update the content on the site but some information may be out of date.
Without prejudice to your statutory rights the site and all information, text, names, images, pictures, logos, links and icons and other materials (without limitation) are provided ‘AS IS’ and on an 'IS AVAILABLE' basis without representation warranty or endorsement, express or implied. In particular, the information provided on this site does not constitute business, medical or other professional advice, and is subject to change. Nor do we guarantee that use of this site will be uninterrupted or error-free, or that the site and its servers are free of computer viruses or bugs.
In no event will the CA be liable to any person for any injury, damage or loss that may arise from the use of any information contained in our site or products advertised on our site, including, without limitation, indirect or consequential damages, or any damages whatsoever arising from use or loss of use, data, or profits, whether in action of contract, negligence or other tort, arising out of or in connection with the use of the site.
HON Code of Conduct (HONcode) for medical and health websites
We try wherever possible to comply with HONcode Principles in particular with regard to:
- Presentation of medical information
- Purpose of the website
- Privacy and confidentiality
- Referenced and dated information
- Disclosure of the governance of the CA and sources of funding
All rights, including copyright and database right, in the CA website and its contents, are owned by or licensed to CA, or otherwise used by CA as permitted by applicable law or the copyright holder. You may not copy, reproduce, republish, download, post, broadcast or transmit any text, images, graphic, logo, button, icon, image and their selection and arrangement thereof, and any underlying source code and software, for any commercial or public purpose without prior written permission from CA or the copyright holder or in accordance with current Copyright, Designs and Patents Acts. You may not adapt, alter or create any of the material or information in this site or use it for any other purpose other than for your personal non-commercial use. You agree to use this site only for lawful purposes.
The CA reserves the right to use for its own purposes any material submitted to the site, including text and images, either on the site or in any other form, including for publicity purposes. The CA reserves the right to monitor submissions to the site and to edit or reject any submissions.
All names, images, logos identifying the CA are proprietary marks. All third party brand, product, service and company names contained on this site are the trademarks, service marks and trade names of their respective holders. The CA does not give permission for their use by any person other than the holders. Any such use may constitute an infringement of the holders’ rights.
The CA has endeavoured to assess the quality of external sites but does not represent, warrant, endorse or hold responsibility over any external sites that may be linked to and from this site. Any external site that you visit by clicking through a link on this site is outside the control of the CA and you visit entirely at your own risk.
The CA reserves the right to change these any of its terms and conditions at any time by posting changes online.
How to contact us
We welcome your feedback. Please leave your comments on the page provided or send a message using the Contact Us form on the site.
Or write to: The Ciliopathy Alliance, 91 Royal College St, London NW1 0SE
Phone: +44 (0) 20 7387 0543
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