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Networks/Projects

Cilia Network
Network of  researchers and clinicians working on structure and function of motile and primary cilia and centrosomes
TheRACil Advancing therapies for Paediatric Renal Ciliopathies
BeatPCD Network to improve diagnosis and clinical care, expand research for PCD patients
PREDICT

Towards a PREcise DIagnosis in Ciliopathies

Cilia Papers X feed on cilia and the related ciliopathies papers
CiliaREN

Improving identification, diagnosis and management of renal ciliopathies

ERKNet - Rare Kidney Diseases

European Reference Network for Rare Kidney Disease

Genetic Alliance UK

Providing information, support and influence services for patients with Rare Disease,

Rare Disease UK

Adding the patient voice for genetic conditions to reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.
Eurodis

Empowering, partnering and advocating for people living with a rare disease in Europe