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2nd Webinar - Sight Loss Research in Ciliopathies - Monday 3rd June 2024

cilia, ciliopathies, research, patient, rare disease, BBS, BardetBiedlSyndrome, Alstrom, usher, jeune, RP, sightloss

We held our 2nd webinar on Monday, 3rd June 2024 and had two really interesting speakers learning about the latest research into RP from Dr. Roly Megaw, University of Edinburgh and about the patient's perspective into sight loss research for Usher patients from Steve White, Cure Usher

The webinar demonstrated that there is much to be hopeful for in respect of sight loss research.

Click here to see the video