The Ciliopathy Alliance held its 15th Annual General Meeting on 2 October 2026, bringing together trustees, clinicians, researchers, and community representatives for an important strategic and scientific update.
Fiona Copeland was invited to attend the Living with PCD In person meeting in Bern, Switzerland. The project Living with PCD (formerly COVID-PCD) is a research studythat aims to answer emerging questions about primary ciliary dyskinesia (PCD). Persons with confirmed or suspected PCD from anywhere in the world can participate. Participants receive a detailed questionnaire when they start the study. Extra questionnaires on special topics are sent from time to time.