Ciliopathy Patient Groups
Alstrom Syndrome
Bardet-Biedl Syndrome
- Bardet-Biedl Syndrome UK
- BBS International
- BBS USA
- BBS Netherlands
- Retina UK
- Bardet-Biedl France
- Bardet Biedl Spain (ANASBABI CILIOPATIAS)
Jeune Syndrome
Joubert Syndrome
Polycystic Kidney Disease
Primary Ciliary Dyskinesia
- Dyskinesia Belgium
- PCD Support Group UK
- Kartagener Syndrom und Primäre Ciliäre Dyskinesie
- DCP-Pisa
- PCD Australia Foundation
- Primary Ciliary Dyskinesia Foundation
Retinitis Pigmentosa
Usher Syndrome