Last week our chair, Hannah Mitchison, attended the first Global PCD Conference in Montreal hosted by the PCD Foundation. 

The event welcomed more than 350 clinicians and 30 families affected by PCD from around the world. It was an inspiring opportunity to connect, learn and share a common commitment to improving understanding, care and outcomes for people living with primary ciliary dyskinesia (PCD).

NICE has released guidance on Setmelanotide, a new drug for managing hunger and weight gain in BBS. This is exciting news for the BBS community and we look forward to seeing how this will be rolled out in clinical practice.