Launch of Life Arc, Genetic Alliance and Beaon for Rare Diseases More Trials Better Data Faster Access Report

Our Chair, Hannah Mitchison, attended a meeting on 17th March 2026 at Parliament to launch the Life Arc, Genetic Alliance and Beacon for Rare Diseases More Trials Better Data Faster Access Policy report. It outlines key policy changes that would make a huge difference to people living with rare disease. Read the report here.